Patients and Caregivers Forums

My brother passed away in November he had a spare lvad I am trying to sell it to pay for his final expenses does anyone need a spare?

I am 48yo male and have completed all the evaluation processes for LVAD and transplant. I am scheduled to have the LVAD surgery in January as a bridge to transplant and I am trying to get me head around the whole process and what will be coming next. I have been reading posts on the site and have...

Hi my husband had an LVAD fitted in July 2018. We travel to India (Goa), every year. However we are having trouble locating a hospital and insurance can anyone help?. After a horrendous year it would be great to get away 😊

hey guys! I am 32 years old Female, received my Heartmate 3 2 months ago. Back home for a week now. One question: I recognized that my speed range on the system controller is jumping. Speed range jumps every second from 5200 to 5250 and back to 5200 and sometimes to 5300. I spoke to my surgeon and...

Was in Hospital 4 months, after LVAD, doing OK but walking is very hard yet, how long dose it take to walk again ?

Does anyone with an LVAD have any experience with a plug-in hybrid vehicle? Any issue with electromagnetic waves?

I had my LVAD implanted on March 9,2018 and after six months in and out of hospitals I am finally getting back some energy. I had at least six alarms on my controller and no explanation on the screen. My battery was changed in the controller and the very next day an alarm. I labeled all 8 batteries...

My wife has had an LVAD for three years. She was recently diagnosed with breast cancer. She had surgery to remove the cancer and is now facing chemotherpy. We are wondering if any other women with an LVAD have faced this challenge.

My brother received his LVAD on 8/30/18 and fortunately was also approved for disability; however, we just learned that when SSDI kicks Jan 2019, he will lose Medicaid....leaving him without any insurance to continue care for LVAD and he won't be eligible for heart transplant. This week he learned...

Hi, Has anyone already had problems with the Battery charger? I had to unplug it from the outlet for a few hours and, when I plugged it back, it did not turn on. There was no electricity problem that could explain that. I do not know what is the half-life of this type of machine, but mine has only 3...

Hi, I'm reviewing my health care and prescription insurance. I'm currently using Medicare and a supplement for my prescriptions. My insurance agent has recommended the Aetna Advantage plan. My understanding is that once I moved to it it's extremely difficult to go back to what I currently have. I...

my dad had a lvad (Heart Mate 2). He passed away October 8th 2018. We have all of his batteries and Wall module as well as accessories like a brand new shower bag, battery clips, etc. If someone will pay shipping I will donate these items to you. The hospital nor thoratec will take these back and...

My 72 yr old husband had surgery on Sept 3rd 2018, he has the heartmate 3, he was in the hospital 11 days and did well, he's still improving everyday except for his balance and he gets light headed, the Dr had changed his blood pressure meds and it hasn't helped so now they want him to go to a ENT...

Hi, I have had my LVAD for 3 months now. I was in the hospital critical care for 1.5 months before my surgery. My LVAD is a "bridge-to-transplant" option. Heart transplant list is long. Can anyone who had their LVAD for 1 year or longer give me any tips about living with the LVAD. I am new to this...

Can anyone tell me if a day of diarrhea constitutes a phone call to LVAD? How much fluid does he need to replenish to keep from dehydrating? Thanking you in advance. Sharon

My 21year old son got his LVAD on August 28, 2018. Hopefully will be released from the hospital tomorrow. I am a little apprehensive about what to expect. Are there any other parents of young adults here that can guide me through these first few months. Thank you.

Looking to purchase Doppler / blood pressure cuff for the purpose of checking LVad patient for Return To Flow.

I am a caregiver and am VERY frustrated with the options for carrying around the backup supplies. We were given a blue bag for this purpose. It has 2 handles on it, but they are too short to be shoulder straps, and the bag is too heavy to carry off the shoulder. The bag has no top to it, to protect...

I have a friend who is soon to be receiving an LVAD. I was quite suprised to receive a call from him today ( he is in the hospital )asking if I would consider being his caregiver after the surgery. I have told him I need some time to consider. When he first told me he was a candidate for this a week...