Patients and Caregivers Forums

Hello everyone, I hope your all doing well and looking forward to the new year. Unfortunately, I lost my husband on Christmas Day. But his the getting the LVAD gave us so much more time to spend with him and make some incredible memories and we will be forever grateful and miss him dearly. I was...

Looking for emotional support from other caregivers, and especially from LVAD knowledgeable Counselors. Please advise if there are counselors available through this site, or anywhere that you know of. Thank you.

I am writing this in hope of finding someone with some advice. Perhaps someone out there has experienced the following sympoms and has found healing. My father, is currently in the hospital and his team doesn't know for sure what is causing his constant dizziness and low PI. He has also experienced...

My husband has a lvad and his dementia is getting worse. Has anyone gone through this?

Can anyone give suggestions on LVAD patients going on a cruise?

I am looking for a grief support group specifically for us caregivers that have lost our LVAD loved one. I’m in the Phoenix area so I’m person groups or online groups would work for me. thanks

Hello all, first off thank you for being here ! My girlfriend and I are the primary caregivers of her 50yr old father who just recently received his LVAD. We understand thats a big undertaking and we are totally down for the job. We / he has had a few bumps along the way but i think we are finally...

My husband is likely getting an LVAD this week. He has cardiomyopathy and is only 40 so they want to put off a transplant as long as possible. The more I read about LVADs, the more I hear of numerous complications, recovery issues, and the amount of care the caregiver must provide in the months...

We are looking for a subacute rehab in nj area. I googled and was not able to find any

2 days after his 5th year anniversary with the LVAD my husband passed away on month shy of his 61st birthday (which is next week). I have the wall plug, the battery charger with 8 batteries and the harness. I am in NC so please let me know if anyone needs any of these items. Contact me if these...

My husband has a LVAD and unfortunately is now on dialysis three days a week at our local dialysis clinic. We can't be the only ones dealing with this! I have had to quit my job so that I can go to dialysis with him and sit beside his chair in order for them to do dialysis on him. They had to be...

I want to thank everyone for looking and responding to my posts. It makes me feel better to know that I am not alone in this. Good news my husband is coming home today from the hospital, he was denied a rehab facility because he walked 160 ft. He is still very weak and I'm not gonna lie but I am...

My husband had Lvad surgery 6/2/22. He has the Heartmate 3. Today finally he got up and walked a little. But he is having excruciating pain at the drive line site when he stands and sits. He says it hurts all the time but not as bad as when he stands and sits. He says it feels like someone is...

My husband received the HeartMate3 6/2/22. He is has been in the hospital since 5/12/22 and now they want to send him to a rehab facility. It seems that his 30 day hospital stay is approaching and they just need to discharge him. Has anyone had a similar situation ?

I learned that the entry site for the heartmate2 gives less problems because the cable is more flexible. this got me thinking and experimented with the allevyn , doubled it over and cut a slot in the centre. This was an improvement but still not happy, folded the allevyn to opposite corners and cut...

How long does it typically take to do this process correctly? I have different nurses telling me different procedure steps! I’m so frustrated! How many times must you have completed the correct sterile protocol before you can be released from the hospital?

Possibly relocating to Grand Forks North Dakota. I’m not finding any facilities closer than Minneapolis. Anyone live in the ND area? Winnipeg has a hospital, but the locator says only for Heartmate II and I have a III. I also don’t know if Medicare will cover me if I use a Canadian hospital. Thanks...

My Husband had LVAD surgery on Friday 1/8/2021. About 10 pm that night they had to put a tube down his throat to see what was going wrong. By 1:00am Saturday Morning I had to consent again for them to go back in him because the right side of the heart wasn't strong enough. Well Sunday the nurse told...

My Uncle has been living with his LVad for many years. He has recently been having complications. He's been in hospital over a week with a GI bleed they can't seem to find. He's had two colonoscopy and swallowed a pill that had a camera in it. They went in today and cauterized three spots that could...

Hello All, My father just had the LVAD surgery on October 12, 2017. I was wondering if anyone experienced weight loss or loss of energy after the surgery. If so, how long did it take for your weight loss to level out.