Lee S., didn't they give you a waterproof shower bag? Avoiding swimming isn't a big deal for me (not my thing anyway), but not being able to use a jetted tub or hot tub kind of stinks. That would help so much with stiff muscles! :-/
My team did give 2 bags after a year!! I just have to take the plunge...no pun intended!! A hot tub would be wonderful to ease the aches. I do have a good system set-up to wash up...I used to be in the Army so I know to wash up without showers when we went out on maneuvers.
I vacuum every week. I didn’t ask permission because I’m positive my team would laugh at me. Same thing happened when I told 5hem about people now showering! They laughed. But then again, I’m on batteries 24/7 and have been for many many years.
According to the inquiries I have done the the big fear with using a vacuum is the increase of static electricity.
Now from what I have heard from my team this is more of a hazard with heartmate 2 and older and also that is a bigger risk while on the mobile power unit (as it is sensitive to power anomalies) but being on the batteries is less of a risk.
That being said I vacuum several times a week but only while on batteries and have had no issues or alarms.
In a nutshell, I do whatever I can do but more carefully. I cannot bathe of course and must shower and have hired a housekeeper who comes in once a month mostly for doing the bathrooms, stove, oven, etc.
One thing I have noticed on this forum are the vast differences between LVAD teams on what we can or cannot do. Fact is, my LVAD team has these differences depending on this experience with LVADs. Had to go to one of the Directors of the department to get one issue fixed as what I was being told did not make sense. With his help the issue was resolved thankfully.
Creating a personal link between LVADers,and their caregivers, with others in the same situation in there own area. A place to post your information so others can connect with you.
Vacuum
Sun, 06/11/2023 - 4:19PMI think this another one of those....OMG you can't do that from any LVAD team.. I do vacuum from time to time and have not had any problems.
I get the water deal...stay away...hell I haven't had a shower in 20 months.
I believe all LVAD teams blow some things out of proportion.
I believe most of your driveline infections come from trauma.
Lee S., didn't they give you…
Sun, 06/11/2023 - 6:59PMLee S., didn't they give you a waterproof shower bag? Avoiding swimming isn't a big deal for me (not my thing anyway), but not being able to use a jetted tub or hot tub kind of stinks. That would help so much with stiff muscles! :-/
Shower Bag
Mon, 06/12/2023 - 11:42AMMy team did give 2 bags after a year!! I just have to take the plunge...no pun intended!! A hot tub would be wonderful to ease the aches. I do have a good system set-up to wash up...I used to be in the Army so I know to wash up without showers when we went out on maneuvers.
I vacuum every week. I didn…
Mon, 06/12/2023 - 12:43PMI vacuum every week. I didn’t ask permission because I’m positive my team would laugh at me. Same thing happened when I told 5hem about people now showering! They laughed. But then again, I’m on batteries 24/7 and have been for many many years.
Vacuum
Mon, 06/12/2023 - 8:48PMI use a Roomba.
Vacuuming
Wed, 06/14/2023 - 2:34PMAccording to the inquiries I have done the the big fear with using a vacuum is the increase of static electricity.
Now from what I have heard from my team this is more of a hazard with heartmate 2 and older and also that is a bigger risk while on the mobile power unit (as it is sensitive to power anomalies) but being on the batteries is less of a risk.
That being said I vacuum several times a week but only while on batteries and have had no issues or alarms.
LVAD Restrictions
Mon, 06/19/2023 - 1:52PMIn a nutshell, I do whatever I can do but more carefully. I cannot bathe of course and must shower and have hired a housekeeper who comes in once a month mostly for doing the bathrooms, stove, oven, etc.
One thing I have noticed on this forum are the vast differences between LVAD teams on what we can or cannot do. Fact is, my LVAD team has these differences depending on this experience with LVADs. Had to go to one of the Directors of the department to get one issue fixed as what I was being told did not make sense. With his help the issue was resolved thankfully.