Patients and Caregivers Forums

My husband had a Heartmate 3 Inserted last March and did very well at first but soon was experiencing GI bleeds, source unknown after tests and scopes. Has rec'd numerous units of blood to get his Hemoglobin up to a whopping 8 or 9. MD wants to try Eliquis instead of Coumadin but not much study has...

Hello VAD family, Just wanted to jump on really quick and make my first ever Vad post. My Husband is just 4 weeks post LVAD implant surgery. We have been living with CHF for about 5 years now, if he wanted to continue life the only option was LVAD surgery. I was prepared for a very difficult...

Leaky valve 2.5 years after surgery

Hey y'all, I am a senior in college in a group working on our senior project. We are developing an improvement in mobility and reducing infection for the driveline exit site. In order to survey customer needs, we made a ~7 minute questionare if y'all have time it would be much appreciated. This...

Hello Everyone! I am a product design student at the University of Cincinnati with a close friend who has an LVAD. Since witnessing her experience as a young 20 year old living with an LVAD, I have been inspired to do my thesis project on trying to address some of the frustrations and pain points...

Dear fellow heart failure patients, I am searching for answers to reverse my heart failure. Have you heard from anyone who had their heart failure successfully reversed with medication? And if so, what medication was involved. Thank you very much for your advise Hans

I have batteries heart mate 2. and shower bags and kits. Free !!! If interested contact me by email I got a transplant genkinger336@bellsouth.net

Does anyone test their INR at home? Was it worth the investment? Were you able to get insurance to pick up any of the cost of the device?

I have a HM3 and recently had some rhythm issues. Has anyone tried using an iWatch to check your HR and rhythms? If so, does it work well?

My husband has end stage heart failure and has the option to have an LVAD. As his caregiver, I am trying to find information on how well a person diagnosed with mild Alzheimers/dementia would be able to function with an LVAD, especially as his cognitive skills declined. We have talked about what we...

Hello, we are new to the VAD community. My husband received his VAD (Heartmate III pump) on August 5th. We live in a small town located 5 miles away from a much larger city, and 24 different home health care agencies refused to provide home health care services (blood draws for lab work) because we...

Link to Article about Data Recorder from Vienna: https://zmpbmt.meduniwien.ac.at/wissenschaft-forschung/cardiovascular-d… Link to Belly Band: https://www.amazon.com/dp/B07C24WY1D/?coliid=I1TNYOCUGLDJA2&colid=2E8W6…...

Hello, I am a very recent LVAD recipient, one month ago today. I just got the ok to go home two days ago. Just starting to get the new lifestyle together. Just thought I would;d introduce myself. I will definitely check out the "bag alternatives', that thing hurts my shoulder, and will be happy to...

I was advised not to shower. But I can use a hand held shower. I was wondering if someone knows if it's better to use teg ad er m or if the press and se al is the same or worse? Thanks.

My husband had his LVAD placed on February 11, 2019. Right now we should be experiencing a lot of then things you all are posting about. What to wear, what can he do, what has it been like etc. We had plans. Unfortunately for me, God had other plans. My beloved died on February 13, 2019. See he...

My dad had an lvad placed a month ago and had internal bleeding that led to a stroke. Has anyone else had issues with surgery? He is 74 and having a rough time, he has a Trach and still dependent on the ventilator. Does anyone have stories where they had issues and it took a long time to recover?

I am 65 and my Heartmate III was implanted on March 11, 2019. I was discharged from the hospital 8 days after surgery and came home. I am extremely fortunate to have an excellent caregiver, my wife Carol. We are making the 3 hour one way drive each week to KU Medical Center for follow up visits and...

My heart was damaged by a chemo drug and that's why I have heartmatelll. Did anyone else have that experience?

I am 54 years old and really had no noticeable symptoms until recently. I thought I had bronchitis went to hospital and got zpack. It didn't help and went back and they after MRIs , Cathetors etc told me I had major heart failure and would need a lvad and eventually heart transplant. It has really...