Patients and Caregivers Forums

Wife was implanted 3 yrs ago with heartmate 2 and has since had 3 drive-line revisions due to infection. We have been told transplant is not a option and have been forwarded to palliative care. We have been commuting from Kansas City to STL sfor care, but this has drained all our resources and...

My Dad received a heart transplant in 2015. We believed that he would make it through. All through FAITH in God knowing that there would be a reason. I am grateful to God everyday for also renewing him heart, mind, and soul to know who God is in his life!! Stay strong and believe!! I will be...

The Freedom Undervest keeps your LVAD equipment safe all day. We recommend sleeping in your Freedom Undervest, so that your LVAD equipment stays secure at night, and you remain comfortable. (It helps to have more than one vest, so that you can rotate them throughout the week.) Visit our Blog to get...

I'm so proud of the Freedom Undervest because it solves a real problem. As many of my colleagues know, driveline infections are a serious risk for LVAD patients, and the Freedom Undervest addresses their need to protect the driveline exit site. Read more: https://medi-materials.com/2018/03/28/no...

Hello I am a new lvad recipient, I had my surgery on september 19 . Everything seems to be going well except for the fact that i can hear the pump running . It is very annoying and I was wondering if anyone else has this issue?

I'm happy to announce the launch of the Freedom Undervest, a garment designed to free you from your VAD bag. Medi-Materials has worked with LVAD patients and doctors to develop a comfortable vest that secures your external equipment in a completely hands-free manner. Learn more on our blog: https:/...

Hello, I am new to this forum . I had my lvad surgery on September 19 . Everything seems to be going good except for the fact that i can hear the high pitched hum of the pump .H as anyone else had this problem?

Hi My father is 60 years old who suffered a ischemic stroke on 11/1/2018. Right now he is half paralyzed with aphasia. He has chronic heart failure. His heart is working 15-20%. He had a bypass in 2006 and a pacemaker implanted in 2012. I talked to a heart failure specialist who said our hope is...

Hello My name is Bassit Nawaz, I was your average university student living a healthy and active lifestyle while making time to study and was on the path to obtaining my Bachelors Degree in Science’s. Yet at the age of 21 I caught viral Infection that caused severe ventricles dilation resulting in...

My Brother-in-Law got his LVAD on November 30, 2017. After a grueling recovery, he got better and after 7 weeks in the hospital he was about to go home. But BAM! he got hit with the flu that is going around. Right away he was put into the CCU again, and his condition started to deteriorate rapidly...

Just as an FYI, the East Carolina Heart Institute (Vidant Hospital), Greenville, NC is now a LVAD hospital. Our surgeon was previously at Duke in Durham and preformed over 40 implants there and has done 5 implants here. (I was the 3rd.) This. is a fantastic addition to eastern NC as it saves...

I have a strange question. Before getting my lvad, one thing I used to enjoy was listening to shortwave radio while falling asleep. I used to prop the radio on my chest while tuning though the frequencies. Now that I have an lvad, I’m finding it impossible to listen anymore. I get an overpowering...

How much stuff do you have to take home when discharge? Also if you don't have a caretaker, will I still be able go home afterwards? Sorry I have a lot of questions to asked.

Hi, i'm from italy and i'm caregiver of my father; he was implanted with heart mate 3 LVAD and now he's slowing recovery. I have a question: anyone use coaguchek to selftest INR at home? Because some doctor says that it's ok, someone else that is better the blood test performed by the hospital...

My husband has recently been given a lvad . He has suffered with cardiomyopathy for a number of years but this last year he has been going down hill. So the specialist decided to fit a lvad as he couldn't wait for a heart transplant. Since his operation he has been having major problems with fast...

Hey everyone. I've had my Heartmate II LVAD since April 2013. I struggled with options until I found the Bosco LVAD Vest at http://www.boscolvadvest.com. Cindy will even customize a vest. I asked Cindy to move the batteries more towards the back on both sides so as to not interfere with my golf...

My father in law had his LVAD implanted on Monday. I'm not sure exactly when he will be returning home. It sounds like we can expect him sometime near the end of the year. I'm wondering if there is anything that I can do to help my mother in law prepare their home for his return. Their house was...

FYI - I have collected various types of info for myself that might also be useful to others here on my Pinterest account. Go to https://www.pinterest.com/flimbach/l-vad-help

I am 38 years old and I have chronic systolic heart failure and I am in class 3 heart failure and I have shortness of breath with everyday activities and I can't exercise because of the shortness of breath. I had a left and right heart catherization done back in October and I recently met with my...

My husband was explaninted today and we now have a new shower bag, a case of Drive line change kits we do not need. We also have a charger station, battery charger and 6 batteries. Would like to sell off unneeded items to help cover medical cost. Best offer will be excepted.