Patients and Caregivers Forums

This morning I have become completely overwhelmed with the size of Irma. I live in Macon Ga and would think I am the program furthest south in Georgia. The inpatients don't bother me it's the evacuation folks on a device. Please post my number for evacuees or for displaced patients who may have a...

Greetings from Macon GA I have major concerns for non-Hospitalized , Mobile ,active VAD patients leaving Florida to seek shelter . Macon as far as I know is the first VAD center north of Florida . I am attempting to mobilize southeast vad coordinators for the weekend in case cousin Tom from Tampa...

Hallo, Wir (Das Contilia Herz und Gefäßzentrum und der Selbsthilfeverein Pulslos leben) wollten gerne zu einer Fahrradtour durch das Ruhrgebiet im Rahmen der grünen Hauptstadt Europas einladen. In den vergangenen Jahren haben wir diese Fahrradtour schon mit Patienten aus Essen und Umgebung...

Has anyone known someone with an LVAD that decided that the LVAD lifestyle no longer is acceptable to them? Has anyone known someone who had their LVAD deactivated?

I found a long narrow back pack that is perfect for carrying my extra batteries and extra controller. It's a perfect size and is very comfortable. Now when I walk around with the extra gear, I hardly notice I am carrying it, and it helps me to stay more balanced and stand up straighter. I found this...