Feeling Lost
Mon, 01/25/2016 - 5:18PMMy 39 year old son just received his HeartWare LVAD on November 30, 2015. He was diagnosed with dilated cardiomyopathy in August 2015, his health declined rapidly on October 26th of last year the doctors had to induce him into a coma ad out him on total life support. During this time he battled a sepsis infection which he got while in the hospital, pneumonia, fevers, declining kidney functions, low blood cell count, high blood cell count along with a whole host of other issues. While in the coma the doctors treated the sepsis with broad spectrum antibiotics which cleared the infection and pneumonia. He was waken up from the coma on November 25th a little better than before his body was a little bit stronger and healthier so the doctors were able to proceed with the LVAD implant only now he needed a RVAD also. Here we are almost two months since the VAD implants and he is back in the hospital with an infection to the driveline. Although the infection was caught early I am still concerned because I have been reading information on if the driveline becomes infected what the possible outcomes and consequences are once this happens. I have no one to talk to and we are so new at this that I feel totally lost. Since my son had the surgery his EF has gone from 9% to 18%, he voice is still hoarse from being on the ventilator for so long and being extubated several times due to his BP and HR. He was progressing so well until a few days ago I don't know what to think or believe from the Doctors and VAD Coordinators. They say the infection isn't blood born and I'm grateful for that....Lost
feeling lost
Fri, 01/29/2016 - 3:01PMIn reply to feeling lost by Dean G.
Lauren W.So glad the have this virtual support
Fri, 01/29/2016 - 7:59PM2 1/2 years into the vad world
Mon, 02/01/2016 - 9:40PMMy sons father was diagnosed
Sun, 12/11/2016 - 3:52AMIn reply to My sons father was diagnosed by Tiffany C.
Jeff W.Dear Amirs
Wed, 01/11/2017 - 12:06AMIn reply to My sons father was diagnosed by Tiffany C.
Jeff W.Dear Amirs
Wed, 01/11/2017 - 12:11AMMy sons father was diagnosed
Mon, 01/09/2017 - 11:59PMFeeling Lost
Tue, 01/10/2017 - 11:21PM