New LVAD patient coming home soon - anything we absolutely need, equipment-wise?
Fri, 06/29/2018 - 10:33PMHi friends -- My dad will be returning home from the hospital with an LVAD sometime in the next week, and I'm trying to help him out by purchasing some gear/accessories that will make his life a little easier and more comfortable once he gets here and adjusts to his new equipment. Because of scouring previous discussions here, I've found a stretchy belt for sleeping with deep pockets that seems like a lifesaver, as well as a concealed carry tee he can put his batteries in and wear like an undershirt, but I'd love to hear from some of you directly: What are your favorite LVAD-friendly clothing pieces, ways to wear your batteries, or accessories for sleeping/showering, etc. What do we really need, to make life easier? Thanks so much for any suggestions!
In case you're interested, too, here's what I got him for sleeping: https://www.stashbandz.com/products/medical-device-belts?variant=2211879911436
And the concealed carry tee: https://tacticalgear.com/tru-spec-24-7-series-short-sleeve-concealed-holster-shirt-white
(Although we can't speak to how well they're working out, because he's not home yet. I'll report back!)
Jocelyn have you seen LVADGear.com?
Tue, 07/03/2018 - 9:37AMNew LVAD - 4 months ago
Wed, 07/04/2018 - 7:57AMRuzich Vest
Tue, 07/24/2018 - 9:38AMFavorite clothing/backpacks/fanny pack
Tue, 03/07/2023 - 10:43AMWe'll be leaving the hospital soon. What are your favorite ways to carry your controller & batteries? And why do you like those best?
In reply to Favorite clothing/backpacks/fanny pack by Terry H.
Lee S.LVAD Wearing
Thu, 03/09/2023 - 9:11AMI use cargo pants and shorts in the warmer weather. Can't do that weight on my shoulders or neck. I put the batteries in the cargo pockets and the monitor in the front pocket or put the batteries in the front pockets and the monitor in one of the cargo pockets and velco the wires together. You do see the wires but so be it. I'm not trying to hide anything anymore. Comfort is the key!! I used a LVAD shirt to go to out to dinner and I thought it was very uncomfortable. I felt like the Incredible Hulk trying to get a polo shirt over the batteries. I'm only 5'5" so I feel like the batteries engulf me. I have bags to carry but don't like dragging a bag around. Alot more freedom with the cargo pants. For sleeping I just connect to wall power and lay the monitor right beside me and sleep like a baby. No issues with the driveline getting tangled at all. It's been 16 months since my implant and I feel like it's always going to be a work in progress....so to speak. But I think I have pretty well adapted. Wish you the best Terry. Reach out if you need to!!
In reply to LVAD Wearing by Lee S.
Greg B.great idea!
Tue, 03/14/2023 - 6:14PMLee S
would you consider posting a picture showing your setup of the cargo shorts? please? i am using the lvad shirt and those dang hard case batteries are rubbing my ribs raw!
i have a leather LVAD vest but you cannot wear a vest with everything!
i am looking at a redesign the batteries to use Pouch type cells. the walls are much softer not mention lighter!
in my pre LVAD days i was using a lot of Lithium Ion cells for Solar Power systems.
Lee i would appreciate you posting a pic of how you wear them.
Thx in advance!
Greg
In reply to great idea! by Greg B.
Lee S.Cargo pants/shorts Wearing
Fri, 03/17/2023 - 9:09AMHey Greg
Not to sure on how to post a picture on this site of how I wear my batteries but if you find the post that is listed as "A great Way to Wear Your Batteries"from Adienne there is a post from Larry B and 2 pics on the way he wears them. I do the same thing. I just can't do the shirts....they rub....there're to heavy to carry there and neck and shoulders can't do the weight. The legs can!!
Hope you find that post
Lee
In reply to great idea! by Greg B.
Larry B.I’m not Lee S. But m pretty sure we wear the cargo shorts/pants
Mon, 03/20/2023 - 12:53PMIn reply to I’m not Lee S. But m pretty sure we wear the cargo shorts/pants by Larry B.
Larry B.(No subject)
Mon, 03/20/2023 - 12:55PMIn reply to I’m not Lee S. But m pretty sure we wear the cargo shorts/pants by Larry B.
Lee S.Larry B Post
Mon, 03/20/2023 - 1:24PMThanks Larry for re-posting your pics. I'm not sure how to post pics on this site and I'm sure that will help Greg out. 1st day of spring....wearing cargo shorts are right around the corner.
Thanks again.
In reply to Favorite clothing/backpacks/fanny pack by Terry H.
Mariza M.Hi, I’ve been using a kind…
Mon, 03/13/2023 - 1:48PMHi, I’ve been using a kind of T-shirts from lvadshirt for the last 7 1/2 years. They are very confortable to carry the batteries but, unfortunately, l am not finding where to buy it any more.
Hope you can find it.
Mariza
In reply to Hi, I’ve been using a kind… by Mariza M.
Diane B.Tshirt
Mon, 03/20/2023 - 6:14PMNot sure which shirt you are referring to. Check the attached link. Hopefully that helps . Diane
https://lvadgear.com/lvad-shirts/
Deleted
Mon, 03/13/2023 - 2:15PMDeleted
lvad clothes
Mon, 03/13/2023 - 5:57PMI have been using T Shirts by LVAD Gear for over 4 yrs, well made and they are really comfortable.
lvad clothes
Mon, 03/13/2023 - 10:26PMI have had my lvad for 2 years and my wife got me shirts from lvad gear c.om HeartMate LVAD Shirt she got a long sleeve and a short sleeve a little pricey but really comfortable